Monday, February 16, 2009


It's been a while since I have blogged on here. For that I am sorry. I have been locked in my house for the last few weeks battling the random symptoms that come along with this disease. I did start Copaxone back in the beginning of Jan but have yet to see any improvement. If at all possible I swear it's been going downhill lately. The numb legs are back, my left eye has been blurry since December, we have done 3 rounds or oral steroids. There was a day that I was in so much pain in my spine I ended up calling my mom to drive 50 miles to come get me and take me to the ER b/c my neuro couldn't see me. Did another round with the oral steroids which helped the back pain, but nothing else.

I have also started my own company out of my house which requires a LOT more time and energy than I expected but it is finally coming together. I now have a website, 3 different web stores, and the ebay auctions on top of it all. But I have finally turned a profit. Not enough to justify staying home with no job, but enough to make me realize that I CAN do this. And hopefully in a few months I will be able to justify not working elsewhere. I LOVE not having to answer to anyone else and I LOVE that all of my work is done on-line and I don't have to answer phone calls and I don't have to deal with people if I don't want to.

(Insert shameful advertising here ---->>> )

My fiance gave me the best present anyone with this disease can get. He bought me a king sized pillow top bed for Valentine's Day. He figured thanks to this cruddy disease I have been spending more time in bed, and I may as well be comfy.